From national advocacy leaders to grassroots changemakers, these organizations have already registered for the Patient Advocacy Changemakers Event next month:

  • ADAP Advocacy Association
  • ADCY5.org
  • AICANcer Patient Advocacy Group
  • The AIDS Institute
  • Aimed Alliance
  • ALD Alliance/NBS Alliance
  • The ALS Association
  • Alzheimer's Association
  • American Brain Coalition
  • American Cancer Society Cancer Action Network, Inc
  • American Kidney Fund
  • Amyloidosis Army
  • Autoimmune Association
  • Axis Advocates
  • Bee Hiv+
  • Brain Injury Association of America
  • Cancer Support Community
  • CancerCare
  • Channeling hope foundation
  • Coalition of Skin Diseases
  • Colorectal Cancer Alliance
  • COPD Foundation
  • CURE SYNGAP1
  • Decoding Developmental Epilpsies
  • Diabetes Patient Advocacy Coalition (DPAC)
  • Dialeb USA Inc
  • Dravet Syndrome Foundation
  • Eosinophilic & Rare Disease Cooperative
  • Epilepsy Foundation
  • Everylife Foundation For Rare Diseases
  • Fans for the Cure
  • FasterCures, Milken Institute
  • Fatty Liver Foundation
  • Fight Colorectal Cancer
  • flok Health
  • FORCE: Facing Our Risk of Cancer Empowered
  • Foundation For Sarcoidosis Research
  • Friedreich’s Ataxia Research Alliance (FARA)
  • GO2 Foundation for Lung Cancer
  • HealthHIV
  • HealthyWomen
  • HFSA
  • HIV + Hepatitis Policy Institute
  • HPV Cancers Alliance
  • Huntington's Disease Society of America
  • Immune Deficiency Foundation
  • Infusion Access Foundation
  • International Foundation for Autoimmune & Autoinfl
  • International Myeloma Foundation
  • Krishnan Family Foundation
  • Lupus and Allied Diseases Association
  • Lupus Foundation of America
  • Massé World
  • Masse World Org
  • The Mathew Forbes Romer Foundation
  • Mental Health America
  • Muscular Dystrophy Family Foundation
  • The Myositis Association
  • National Alliance for Caregiving
  • National Alliance on Mental Illness (NAMI)
  • National Alopecia Areata Foundation
  • National Brain Tumor Society
  • National Coalition For Cancer Survivorship
  • National Eczema Association
  • National Health Council
  • National Multiple Sclerosis Society
  • National Organization for Rare Disorders (NORD)
  • National Spine Health Foundation
  • Neuropathy Action Foundation (NAF)
  • Nevus Outreach, Inc
  • Parent Project Muscular Dystrophy
  • Patient Advocate Foundation
  • Personalized Medicine Coalition
  • Prevent Blindness
  • Rare And Black
  • RARE Foundation
  • Rural Minds
  • Sick Cells
  • Sjogren's Foundation
  • Smith Center for Healing and the Arts
  • Society for Women's Health Research
  • The Stiff Person Syndrome Research Foundation
  • The Stroke Foundation
  • Susan G. Komen
  • TBCK Foundation
  • Tigerlily Foundation
  • U.S. Pain Foundation
  • United Porphyrias Association
  • United Spinal Association
     

As of September 22, 2026. List subject to change.