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5:30 PM
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Kick off the BIO Patient Advocacy Changemakers Event with a Welcome Reception at Via Sophia.
7:00 AM
8:30 AM
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8:45 AM
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We will kick off our 14th annual patient advocacy summit with insights, reflections and calls to action from leaders across the patient advocacy community.Moderator
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9:30 AM
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What can we expect as we wind down 2025 and head into the 2nd year of the 119th Congress? We'll hear from Hill staff representing the Four Corners on issues that matter to patients.
10:15 AM
10:30 AM
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What is on the table for 2026 state legislative sessions and what can patient advocates do to support their priorities? Hear from fellow advocates and experts so you can hit the ground running in January.
11:15 AM
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Despite some strong headwinds, patients realized some significant wins during the 2025 state legislative sessions. Hear from leading advocates whose efforts resulted in positive change.Speakers
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12:00 PM
1:00 PM
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Vaccines are one of the most important and effective innovations for the defense of public health in America. They have saved millions of lives and drastically reduced or eliminated deadly and debilitating infectious diseases like smallpox, polio, and measles and prevented cancer. But today, misinformation, pseudoscience and ideology are sowing doubt and confusion about these miracles of biotechnology innovation and putting our national health at risk. Join the discussion on how to restore the country’s faith in vaccines.
1:45 PM
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Fireside chat between BIO's Chief Patient Advocate, Michele Oshman, and BIO's CEO, John F. Crowley.
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2:30 PM
2:45 PM
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How do you control misinformation and swirl within your community? How can you empower your membership online? Where can you go to find credible data? Hear from seasoned communications experts, scientific leaders and speakers who bring a unique perspective as the parents of remarkable children.
3:30 PM
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Patients' experiences differ between the US and Europe when it comes to having access to innovative medicines. This session will explore the potential implications of adopting HTA-like controls on US patient access.Moderator
4:15 PM
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Dr. George Tidmarsh, Director of the Center for Drug Evaluation and Research at the U. S. Food & Drug Administration will sit down with John F. Crowley for a fireside chat. Dr. George Tidmarsh is the Director of the Center for Drug Evaluation and Research. The Center’s mission is to ensure that safe, effective, and high-quality drugs are available to the public.
5:15 PM
5:45 PM
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Join us for a Networking Reception to finish Day 1. Reception will be held at Michele's, located at 1201 K Street NW, Washington, D.C. 20005.
8:30 AM
8:45 AM
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Advances in biomedical research are making genetically targeted technologies easier to administer and more convenient for patients, but we need to advance public policies to ensure patients can access them. Learn about the science, the promise and the opportunities for patients to benefit from truly game changing treatments.
9:30 AM
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Even the most advanced 21st Century innovations cannot help patients if the 21st Century reimbursement paradigm prevents patients from accessing them. Join the conversation and discuss concrete steps policymakers can take to ensure patients benefit from cutting edge biotechnologies.
10:15 AM
10:30 AM
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Congress created the 340B Program in 1992 to help safety-net hospitals and clinics care for vulnerable and uninsured patients. Under 340B, manufacturers provide significantly discounted medicines to certain clinics and hospitals. The original intent was for these entities to either pass the discounts on to patients or reinvest their 340B profits to support more charity care. However, even the best laid plans can sometimes go awry and today, the 340B program has morphed into a massive profit generator for pharmacy chains, hospitals and middlemen like pharmacy benefit managers (PBMs), failing to deliver discounted medicines to the patients who need them most.Speakers
11:15 AM
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Three years into the Inflation Reduction Act (IRA), implementation concerns and access barriers are increasingly jeopardizing Seniors’ access to therapies. However, there are a number of concrete actions Congress and the Centers for Medicare and Medicaid Services (CMS) can take now to improve and protect patient access going forward.Moderator
12:00 PM
12:30 PM
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BIO CEO John F. Crowley will sit down for a moving conversation with Will Reeve, ABC News Correspondent, and Board member of the Christopher & Dana Reeve Foundation. In 2000, Will’s father, actor and activist Christopher Reeve, served as the opening speaker for BIO’s international convention in Boston and is quoted as having said “Biotechnology is a great big word that just means ‘hope”. John F. Crowley was in the audience that day and found great inspiration in that moment. Will Reeve carries forward his father’s legacy by showing that true heroism lies in compassion, resilience, and everyday acts of courage. His deeply personal special, "Will Reeve: Finding My Father," captures the power of generational bonds, self-discovery, and storytelling to move hearts and minds. A powerful voice on grief and healing, Will speaks openly about navigating loss and finding strength in vulnerability, making space for others to do the same. A passionate advocate for change, Will uses his platform to honor the legacy of his parents, Christopher and Dana Reeve, by empowering everyday people to support spinal cord research and improve the lives of those impacted by paralysis.Speakers
1:30 PM
1:45 PM
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This introductory workshop will walk you through the essential building blocks of content creation. From identifying your audience and choosing the right platforms to creating engaging posts and establishing your authentic voice, you’ll leave with a clear roadmap for getting started. Perfect for anyone ready to take the first steps toward a stronger digital presence.Speakers
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The federal policy landscape is dynamic, complex and often challenging for stakeholders to navigate. While many organizations have experience engaging Congress, this session will explore the unique opportunities for patient groups to engage the Administration.
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2:45 PM
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This advanced workshop dives deeper into how to maximize your content’s reach and effectiveness. We’ll cover analytics, optimization, and platform-specific tools to help you track what’s working, and refine what’s not. You’ll learn how to expand your audience, repurpose content for greater efficiency, and use data to drive meaningful engagementSpeakers
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Hear best practices and share your ideas during this workshop, where we will discuss state level engagement for groups large and small, in-person and virtual -- all with the goal of improving patient access to medicines.
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